Well it's been a while since I last updated this. Since then I have gone off of Methotrexate due to hair loss, sickness and it not helping with my RA. I was put on Lefinomide(sp) was on it for a month and a half, I was throwup sick and the other the entire time, turns out it was screwing with my liver, the enzymes AST and ALT were extremely high and still are, I am on a medication that is suppose to clear out that drug from my liver, I drink 3 glasses of the crud a day, the maximum amount. I have an appt for a liver and digestive ultrasound along with an appt with a gastro hematology dr on the 7th of October. My RA Dr. is putting me on the Enbrel injections, hopefully the shots will arrive early next week so I can start them. My joints are full of toxins, sore and swollen. Hopefully this medication to clear my liver will help and get that junk out of my liver and hopefully the Enbrel will work for my RA. I'm confident that it will.
It has been so hard to be positive during the past few months. I went camping and was sick or in pain the entire time. One night during the middle of the night, I had to rush out of the tent to throw up, unfortunately I woke someone up, she couldn't believe how violently I was throwing up. Don't think I'll go camping again.
I hope everyone is enjoying the fall.
Living with Rheumatoid Arthritis
Wednesday, October 2, 2013
Saturday, August 24, 2013
So I started a new med called Leflunomide and I have been getting more sick every day. Today I woke up at around 9 let the dogs out, went back to bed til noon, let the dogs out, laid on the couch, fell asleep til 3, not to mention running to the bathroom to get sick and the other one. I feel like my body is a failure, it's failed me, I feel like my body is one big weight, I'm sick and I'm in pain, what did I do to deserve this? Yes I am throwing a pitty party for 1. I'm suppose to go camping Thursday to Tuesday next week and feeling like this I don't know if I can, it even hurts my elbow to freaking type, wtf, this shit sucks, RA can kiss my ass. I've been crying too and I really wish my mom were here, I really need to hear her voice, wish there was a phone in heaven :(
Wednesday, August 21, 2013
I woke up with a cantaloupe for a left knee, yay for me, it feels so good, yes I'm kidding, it hurts like hell. I had my dr appt today to switch medications. I went there with a hat on because of the hair loss, he asked me to take it off so he could see, he was like wooooaaaaaa, ok Fonzey calm down. Anyway, I'm still in a severe state, nobody knows if it will get better or worse because nobody knows nothing about this auto immune disease. I cried all the way home while driving, must have looked like an idiot cuz the song blurred lines came on, so I was crying and car dancing at the same time lol I really am tired of this. There is a woman who has said she will help me with my diet, she's a triathlete with RA and inspires me to at least change my eating habit, I'm not real keen on doing tons of exercise because it just hurts too much afterwards. She is amazing though, you should check out her website, www.AngelaDurazo.com you can find her blog on there as well. That's it for now.
Saturday, August 17, 2013
I am really horrible at keeping up with my blogs. My RA has been pretty bad, my left leg for some reason is just extremely painful, I got an injection in my bursa on Tuesday, it's helped that but my knee, ankle and entire foot just really hurt. I am going camping in a few weeks, I pray that I will be able to do some hiking or something while I'm there, instead walking back and forth to the dock.
My dr upped my Methotrexate to 25 mg's a week, not liking it, I get sick and my hair is thinning. I see him again Sept 19th for check up and blood work, I also go in for blood work on Monday.
My wish is that my friends and family will understand what it is I go through and why it is I do or don't do things.
My dr upped my Methotrexate to 25 mg's a week, not liking it, I get sick and my hair is thinning. I see him again Sept 19th for check up and blood work, I also go in for blood work on Monday.
My wish is that my friends and family will understand what it is I go through and why it is I do or don't do things.
Saturday, July 6, 2013
Diagnosed
Hello folks, I was diagnosed with RA June of 2013, although about 15 years ago my doctor then thought I might have it but figured I was too young and didn't do anything about, so fast forward to May 2013, I feel a bump on the top of my left hand, went to my nurse practitioner for something else but had her heel it, she figured it was inflammed and had me but a warm cloth on it to get it out, it didn't like it that much, they actually hospitalized me because they didn't know what it was. Well 2 weeks later, I wake up with a major swollen right foot, it was red and purple and so damn swollen, my NP gave me prednisone, it helped, she also sent me to an RA doc. 2 weeks later before the RA doc, it flared up again on my foot, so by the time I saw the RA doc it was severe. So I'm currently in a severe state of RA, on 3 medications, in pain every day, even as I type, so I'm going to stop for now.
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